flok Research is our umbrella study open to all flok App users age 18 or older, and to those under 18 with the consent of their parent or guardian. The study will attempt to:
- Define the systemic phenotype of flok conditions across physiological systems and comorbidities thereof
- Identify aspects of phenotype related to underlying disorder vs treatment side effects of a highly restrictive and synthetic diet.
- Understand the impacts of lack of standardization of care across the population (age, sex assigned at birth and gender identity, economic and geographic distribution)
- Understand the heterogeneity of phenotype and its impacts on quality of life (QOL)
- Better understand individual protein tolerance
- Predict metabolic aberrations (e.g. elevated amino acid levels, impending acute metabolic events)
- Predict potential response to therapeutics based on genotype & phenotype